Registry Forge — Device & Equipment Dashboard

Cohort: Synthetic demonstration cohort  ·  Generated 2026-05-12 13:10  ·  k-anonymity threshold k=2
Patients with devices
35
across all categories
Device categories
14
after k≥2 filter
Distinct devices/indicators
18
after k≥2 filter
Source records
498
209 coded · 289 text

Device & care-pathway categories

Each row aggregates the patients and records associated with one device category. "Source" indicates whether matches came from structured codes (coded), free-text regex (text), or both (coded+text).

CategoryUnique patientsTotal recordsSource
als_care_indicator_respiratory25
70coded
als_care_indicator_mobility23
46coded
als_care_indicator_sleep19
29coded
aac_device18
52text
als_care_indicator_symptom_mgmt16
22coded
als_care_indicator_diagnostic15
24coded
cough_assist15
46text
wheelchair_manual14
41text
suction12
31text
niv12
30text
als_care_indicator_aac11
18coded
wheelchair_power11
30text
peg10
35text
trach9
24text

All devices / indicators

Per-label aggregate. Use the filter box to narrow down by name or category.

Device / indicatorCategoryUnique patientsRecordsSource
Sleep studyals_care_indicator_sleep1929coded
Botulinum toxinals_care_indicator_symptom_mgmt1622coded
Mobility statusals_care_indicator_mobility1625coded
Spirometryals_care_indicator_respiratory1626coded
Flow volume loopals_care_indicator_respiratory1526coded
Needle EMGals_care_indicator_diagnostic1524coded
PT re-evaluationals_care_indicator_mobility1521coded
cough_assistcough_assist1546text
manual_wheelchairwheelchair_manual1441text
Pulse oximetryals_care_indicator_respiratory1318coded
suctionsuction1231text
bipapniv1230text
Speech screeningals_care_indicator_aac1118coded
power_wheelchairwheelchair_power1130text
tobiiaac_device1025text
eyegazeaac_device1027text
peg_tubepeg1035text
tracheostomytrach924text

Patient × device-category matrix

Patient identifiers are PT-NNNN pseudonyms. Cell shows the number of records for that patient in that category; · = none. Categories with fewer than k=2 unique patients are suppressed entirely.

Patientals_care_indicator_respiratoryals_care_indicator_mobilityals_care_indicator_sleepaac_deviceals_care_indicator_symptom_mgmtals_care_indicator_diagnosticcough_assistwheelchair_manualsuctionnivals_care_indicator_aacwheelchair_powerpegtrach
PT-0020511423·3·2·4·3
PT-00033·43·3·44··3·2
PT-00175216··3·3··3··
PT-003052141··12331··
PT-00252413·24····222
PT-0026·1271·34····4·
PT-001013·31·4·4···32
PT-00015212313······3
PT-0014322·1··2··433·
PT-001311·4··3·43···3
PT-0015411·12···2·34·
PT-0019·124·1441·1···
PT-0006432··1··1·1··3
PT-0021112·223·····4·
PT-002744··21···4····
PT-0032······332··34·
PT-000432··22···23···
PT-0034···1··3··3··34
PT-000711211···2·1·4·
PT-000523··12·4······
PT-00124312···2······
PT-00184···1···1··4·2
PT-002312111·13·2····
PT-00161·····2···134·
PT-00292·2311····1···
PT-0011·1111··4···1··
PT-0024·4·1···2·2····
PT-0028··12·1··32····
PT-000931····3···1···
PT-00222····1··4·1···
PT-00022·····4···1···
PT-0035······34······
PT-0008211··1·1······
PT-0033·········4····
PT-0031·········1····

Source-record snippets

Up to 3 representative text excerpts per regex pattern, prioritizing unique-patient diversity. Snippet text truncated to 200 chars. For chart-review preparation and source verification; not for analysis.

cough_assist 15 unique patients · category cough_assist

Mechanical insufflator-exsufflator

PT-0001 · ccda_section · matched cough assist
...patient cough assist placed on 04/15/2022 for management of bulbar symptoms with declining FVC...
PT-0002 · document:rtf · matched cough assist
...patient cough assist placed on 04/15/2023 for management of bulbar symptoms with declining FVC...
PT-0009 · document:html · matched cough assist
...patient cough assist placed on 08/15/2023 for management of bulbar symptoms with declining FVC...

manual_wheelchair 14 unique patients · category wheelchair_manual

Manual wheelchair

PT-0003 · document:rtf · matched manual wheelchair
...patient manual wheelchair placed on 09/15/2024 for management of bulbar symptoms with declining FVC...
PT-0005 · document:html · matched manual wheelchair
...patient manual wheelchair placed on 08/15/2022 for management of bulbar symptoms with declining FVC...
PT-0008 · document:html · matched manual wheelchair
...patient manual wheelchair placed on 09/15/2023 for management of bulbar symptoms with declining FVC...

suction 12 unique patients · category suction

Portable suction device

PT-0003 · ccda_section · matched suction device
...patient suction device placed on 02/15/2023 for management of bulbar symptoms with declining FVC...
PT-0006 · ccda_section · matched suction device
...patient suction device placed on 05/15/2024 for management of bulbar symptoms with declining FVC...
PT-0007 · document:html · matched suction device
...patient suction device placed on 01/15/2022 for management of bulbar symptoms with declining FVC...

bipap 12 unique patients · category niv

Non-invasive ventilation

PT-0004 · document:html · matched BiPAP
...patient BiPAP placed on 05/15/2020 for management of bulbar symptoms with declining FVC...
PT-0013 · ccda_section · matched BiPAP
...patient BiPAP placed on 07/15/2022 for management of bulbar symptoms with declining FVC...
PT-0015 · ccda_section · matched BiPAP
...patient BiPAP placed on 05/15/2021 for management of bulbar symptoms with declining FVC...

power_wheelchair 11 unique patients · category wheelchair_power

Power wheelchair

PT-0003 · document:html · matched power wheelchair
...patient power wheelchair placed on 05/15/2022 for management of bulbar symptoms with declining FVC...
PT-0011 · document:rtf · matched power wheelchair
...patient power wheelchair placed on 09/15/2023 for management of bulbar symptoms with declining FVC...
PT-0014 · document:html · matched power wheelchair
...patient power wheelchair placed on 02/15/2021 for management of bulbar symptoms with declining FVC...

tobii 10 unique patients · category aac_device

Tobii Dynavox SGD

PT-0001 · document:html · matched Tobii
...patient Tobii placed on 05/15/2024 for management of bulbar symptoms with declining FVC...
PT-0007 · document:rtf · matched Tobii
...patient Tobii placed on 06/15/2022 for management of bulbar symptoms with declining FVC...
PT-0010 · ccda_section · matched Tobii
...patient Tobii placed on 05/15/2024 for management of bulbar symptoms with declining FVC...

eyegaze 10 unique patients · category aac_device

Eye-gaze AAC system

PT-0003 · document:html · matched eyegaze
...patient eyegaze placed on 08/15/2020 for management of bulbar symptoms with declining FVC...
PT-0011 · document:rtf · matched eyegaze
...patient eyegaze placed on 06/15/2023 for management of bulbar symptoms with declining FVC...
PT-0012 · ccda_section · matched eyegaze
...patient eyegaze placed on 02/15/2024 for management of bulbar symptoms with declining FVC...

peg_tube 10 unique patients · category peg

PEG / gastrostomy mention

PT-0007 · document:rtf · matched PEG tube placed
...patient PEG tube placed placed on 07/15/2023 for management of bulbar symptoms with declining FVC...
PT-0010 · ccda_section · matched PEG tube placed
...patient PEG tube placed placed on 08/15/2020 for management of bulbar symptoms with declining FVC...
PT-0014 · document:html · matched PEG tube placed
...patient PEG tube placed placed on 09/15/2023 for management of bulbar symptoms with declining FVC...

tracheostomy 9 unique patients · category trach

Tracheostomy mention

PT-0001 · document:rtf · matched tracheostomy
...patient tracheostomy placed on 04/15/2020 for management of bulbar symptoms with declining FVC...
PT-0003 · document:html · matched tracheostomy
...patient tracheostomy placed on 08/15/2023 for management of bulbar symptoms with declining FVC...
PT-0006 · document:rtf · matched tracheostomy
...patient tracheostomy placed on 08/15/2022 for management of bulbar symptoms with declining FVC...

About this dashboard

This is a privacy-safe summary of the device-extraction outputs from device_extraction.py. It combines two underlying CSVs:

  • device_codes.csv — structured matches against the DEVICE_CODES lookup table (HCPCS / CPT-4 / SNOMED-CT codes for devices and ALS-care-indicator procedures).
  • device_extractions.csv — regex matches against notes[].narrative_text and documents[].plain_text using DEVICE_PATTERNS (PEG, BiPAP, tracheostomy, cough assist, power wheelchair, AAC/SGD brand names, etc.).

Privacy controls applied throughout:

  • Patient identifiers are replaced with PT-NNNN pseudonyms, stable within this run.
  • Calendar dates are reduced to year only.
  • Snippet text is truncated to 200 characters.
  • Devices, patterns, and categories with fewer than k=2 unique exposed patients are suppressed entirely (k-anonymity at the device level).
  • Resource UUIDs are never emitted.

Important caveat about ARC data: SMART on FHIR pulls from the clinical EHR rarely capture DME-supplier records, so direct device-procurement codes (E0470 BiPAP, K0813 power wheelchair, B4034 gastrostomy supplies) are typically absent from structured procedure records. The structured side of this dashboard surfaces mostly ALS-care-indicator procedures — spirometry, sleep studies, EMG/NCS, speech screening, botulinum toxin, PT/OT re-evaluations, and mobility/self-care status reporting — that signal where the patient is on the typical ALS-care pathway. Direct device presence is typically captured by the regex side from clinical notes.